Navigating childhood cancer as a family: Childhood Cancer Awareness Month

September is Childhood Cancer Awareness Month, a worldwide effort to increase awareness about childhood cancer and provide support for affected children, young people, and families. This initiative was first announced by former US President Obama in 2010 and has now become a global movement. This month-long campaign brings together the entire childhood cancer community to show support for those affected by childhood cancer.

The Gold Ribbon is the internationally recognised symbol of Childhood Cancer Awareness. It represents the bravery, strength, and hope of children and families fighting this disease. This blog post will explore the importance of this awareness month and the challenges families face when navigating childhood cancer.

Childhood cancer statistics

Although childhood cancers make up less than 1% of all cancers in the UK, their impact is still significant. While childhood cancer is rare, acute leukaemia and cancers of the brain and spinal cord are the most common types of cancer in children. Over the past few decades, there have been remarkable improvements in the prognosis for children diagnosed with cancer. Fifty years ago, only 1 in 4 children diagnosed with cancer survived. Today, over 80% of children diagnosed with cancer in Great Britain survive for five years or more, indicating increased chances of recovery and improved treatment methods.

While the proportion of childhood cancers is small compared to adult cancers, the impact on affected families is significant.

The journey for parents

Receiving a cancer diagnosis for a child can be devastating for the entire family. Parents are faced with uncertainty, fear, and tough decisions. It is crucial to provide support and resources for parents to navigate this challenging journey. When you receive a cancer diagnosis for your child, your emotions can be thrown into chaos. You may feel numb, confused, or unable to process the news. You may also feel angry, guilty, scared, or alone. Whatever you are feeling, it is important to understand that your response is completely normal. There is no right or wrong way to react. It can be difficult, but being honest about your feelings with your partner, friends and family, or a counsellor can ease your anxieties and fears. This will be a tough time, but remember that you do not have to face it alone.

Support and resources available

If you are a parent affected by childhood cancer, you can seek help and support from organisations such as Young Lives vs. Cancer, Macmillan, and the Teenage Cancer Trust. These resources provide tailored information, guidance, and emotional support to help you understand the treatment and care process. It’s easy to neglect yourself when you’re so focused on looking after your child. But if you don’t take time to relax and stay healthy. By looking after yourself, you’ll be better equipped to take care of your child and your family.

Supporting siblings and communication

Siblings of children with cancer also require support and understanding. Siblings will go through a lot of the same emotions as you – but will often hide their feelings because they don’t want to cause more stress. They may experience a range of emotions and require reassurance during this difficult time. Parents should try to create a safe and open environment for siblings to express their feelings and ask questions. Clear and honest communication within the family can facilitate age-appropriate discussions about the diagnosis and treatment and help reduce children's anxiety and fear. Additionally, contacting your child's school can help extend this care beyond your home, providing your child with a complete support system.

Coping strategies

When supporting a child with cancer, parents should also care for their emotions and difficulties. It can be helpful to seek professional support and connect with other parents going through a similar experience. Encouraging children to continue with their hobbies and activities can help maintain a sense of normalcy in their lives. It's not easy to inform friends and family about your child's cancer, but their support can be invaluable. It's also important to inform your employer about the situation so you can work together to find a solution. Also, consult with medical professionals and trusted sources recommended by doctors rather than relying on internet searches. With the right resources and a strong support system, parents can navigate through their child's cancer treatment.

Conclusion

September is Childhood Cancer Awareness Month, and it's a time to remind ourselves to raise awareness, support research, and advocate for better access to treatment and support services. As a community, we can make a meaningful difference in the lives of children and families affected by childhood cancer. This month and beyond, let's provide hope, support, and awareness.

A cancer diagnosis is never easy, and it's especially difficult for parents whose children are affected. It's important to take care of yourself and seek help when needed. Focus on supporting your child, and don't hesitate to rely on your support network. Friends and family can be an incredible source of help and comfort. If you're struggling, consider speaking with a counsellor to help you process your emotions and provide support during this tough time.

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